The Brain and Spine Foundation has been awarded a grant of £60,000 by the Masonic Charitable Foundation to help expand the charity’s helpline which offers support to patients with neurological conditions.
Last year, the helpline received around 3,000 calls, but the specialist neuroscience nurses who provide advice and support were unable to answer as many as a quarter of them.
The grant will provide extra capacity for the service which is struggling to cope with a serious decline in the quality of treatment and care for neurology patients over the last few years.
The charity is a member of the Neurological Alliance, which last month launched the results of their Patient Experience Survey.
The results, published in the report Falling Short: How has neurology patient experience changed since 2014, show that services to diagnose, treat and provide on-going care to neurology patients have seriously worsened since 2014.
42 per cent of patients saw their GP five or more times before seeing a neurological specialist – an increase from 31.5 per cent in 2014, and the number of people who feel involved in making choices about their health services dropped from 71 per cent to 63 per cent in 2016.
Alice Doyle, CEO of the Brain & Spine Foundation, said:
We are very grateful to London Freemasons for their generous grant, which will help us to provide essential advice and support to hundreds of people with neurological conditions who we have simply not had the capacity to help until now.
London Freemason, Trevor Koschalka, visited the charity to find out more about their work:
“We are very pleased to be able to support this hugely important service that the Brain and Spine Foundation is providing to thousands of neurological patients in London and across the country.”
About the Brain and Spine Foundation
The Brain & Spine Foundation Helpline is open from 9am to 4pm from Mondays to Thursdays and 9am-1pm on Fridays. The freephone number is 0808 808 1000. The nurses can also be contacted via email: firstname.lastname@example.org
There are over 350 known neurological conditions – including familiar ones like stroke and MS and rarer ones like subarachnoid haemorrhage and Chiari malformations. In the UK there are over 12 million people living with a neurological condition.