Posted: 16th January 2018

Watch our three part mini-documentary series, Making Memories, which follows the Liversidge family’s adventures at the Bendrigg Trust.

 


Jason is living with motor neurone disease, a progressive and life-limiting condition that affects his ability to move and talk. We support the family with grants to relieve the financial pressure they face now that Jason and his wife Liz are no longer able to work, and grants to fund family trips. The family is making the most of the time they have together, and our support is helping them to build lasting memories.

The Bendrigg Trust provides adventure activities for disabled and disadvantaged people, and our grant of £40,000 has funded ceiling hoists for their new fully accessible residential block. We invited Jason, Liz, Poppy and Lilly to be among the first guests to stay at the new centre and take part in the outdoor activities on offer.

 

Episode 1: Living with motor neurone disease


Jason’s diagnosis of Fabry disease in 2012 and motor neurone disease less than a year later has been difficult for the family to come to terms with. Over the past six years his condition has deteriorated, leaving him almost completely paralysed and making it difficult to speak.

Jason’s illness has also had a huge financial impact on the family as he and Liz are no longer able to work. Our grants have eased the financial pressure on them as well as funding normal childhood activities for Poppy and Lilly, like horse-riding and swimming, and family days out.

 

Episode 2: The Bendrigg Trust

 

The Bendrigg Trust is a specialist outdoor centre based near Kendall in Cumbria. They work with people with a wide range of disabilities, providing challenging outdoor activities. The centre is fully accessible and all of the activities are inclusive to everybody.

Last year, our £40,000 grant helped the Bendrigg Trust install hoists in their new accommodation block, Acorn House. Until now, only two bedrooms were fitted with hoists, meaning that many wheelchair users had to be turned away. Thanks to this grant, more than 100 extra wheelchair users will be able to visit every year.

“It’s becoming increasingly difficult to go away as a family, as we’re always so worried about Jason and whether we’ll have the equipment he needs while we are away from home. Places like the Bendrigg Trust are so important for families affected by disabilities; it’s given us a chance to get away and feel a sense of normality and adventure.” – Liz

 

Episode 3: Making Memories

 

As Poppy and Lilly are so young, it’s important to Jason and Liz that they document as many happy memories as they can to help the girls remember their dad. The family are making the most of the time they have together and our support is helping them to build lasting memories.

 

Video Diary

 

In this behind the scenes video diary, Jason, Liz, Poppy and Lilly tell us the highlights from their holiday.