MCF has awarded £10,000 to Prader-Willi Syndrome Association UK to help them expand their support in the south of England.
Prader-Willi syndrome (PWS) is a rare genetic condition which causes a wide range of problems including low muscle tone, restricted growth, learning difficulties, and a permanent feeling of hunger which can easily lead to dangerous weight gain.
The charity supports people with PWS by providing information, advice and training to families and carers as well as professionals. This grant will help fund the salary of a support worker to deliver this service in the south of England.
Helping people like Isobel
Four year old Isobel Walker is one of just 2,000 people with PWS in the UK. Like others with the condition, she suffers from an uncontrollable appetite, never feeling full no matter how much she eats. Obesity is a real risk, and her parents have to enforce a strict diet that will never end. To make matters worse, because of differences in their digestion, people with PWS can only consume 60 per cent of the calories that people without the condition would normally eat.
Neil Walker, Izzy’s father and a new Candidate Trustee of the Prader-Willi Association said:
“PWS is very rare and a key function of our Association is to educate parents, doctors, teachers and other carers about the needs of those with the condition. We’re very grateful to the Freemasons for their help in funding a new support worker.”
David Innes, Chief Executive of the Masonic Charitable Foundation said:
“We are very pleased to have been able to help the Prader-Willi Association. They do wonderful work in promoting awareness of PWS and in supporting those who have the condition and their families.”